Unanswered Prayers – The Crohn’s Saga Part 84

Unanswered prayers are often part of being a patient in the hospital. If you remember from last time, my doctors were telling me that I’d need an NG tube if I didn’t start digesting soon. After getting that news, I walked around and bounced up and down as often as I could. I’d been told that getting an NG tube was very unpleasant and that moving around could help me digest. It did not.

I held in the vomit for days, but in the end, I lost the fight. I couldn’t get the bile to pass through, so I threw up liters of black and green onto the floor of my hospital room and into a bucket they’d given me for just in case. Here’s the thing guys, I felt defeated, but I wasn’t surprised. When they told me I might need one, I was scared, but I also just kind of knew it was inevitable.

As some of my Twitter buddies pointed out, NG tubes are given for relief, not torture. I didn’t want one, but I also knew that if I needed one, it would help me feel better. Like I said, I’d been holding on to vomit for days. That in itself is already very unpleasant. So, when I threw up, I felt  twinge of despair, but I mostly just felt resigned and hopeful that even though things were lousy right now, at least I’d get some relief.

NG Tubes – The Crohn’s Saga Part 85

So here’s the deal guys – NG tubes do bring relief, but they are also very unpleasant. In the last installment, you saw that despite my best efforts to start digesting again after surgery, nothing worked. I’d held it in for days, but in the end, I threw up liters of bile everywhere. That sealed the deal and meant I’d need an NG tube.

At first, it wasn’t bad at all. Doctors took a lubed up tube and fed it down my nose, past my throat, and into my stomach. Yes, it felt weird going in, but once it was in and started vacuuming up bile, I started to feel a lot better. As I mentioned before, willing yourself to hold in vomit for days is also very unpleasant, so the vacuuming was a relief. And really, the tube just felt like post-nasal drip. Annoying, but manageable.

After a while though, it started to drive me crazy. I felt the constant need to swallow, but swallowing didn’t help. Then my nose and throat started to get irritated and raw. Doctors gave me chloraseptic spray to help, but it wasn’t very effective. On top of that, I had already been feeling uncomfortable tugs from the catheter when I’d move around or try to sleep, but now I was feeling them through my nose and throat too. In short, I was pretty miserable overall and I still hadn’t even been able to look at the ostomy yet.

As a heads up, the next few entries will cover my life in this state. The Crohn’s Saga is mostly to educate, but it’s also here to help me cope with memories of events I couldn’t emotionally manage at the time. The few days I spent with an IV, a catheter, and an NG tube were very difficult. I had mostly kept my chin up throughout that past year of being sick, but these were the days when I finally started to crack. These were the days when I finally started to despair.

Music Ruiners – Lousy Marketers

Music Ruiners are a special breed of lousy marketer. I’m talking about the people who pick songs to use in commercials here. They take someone’s art and repurpose it for profit. It’s repulsive.

In case you couldn’t tell from my post containing Hoot’s Insomniac Playlist for Feeling Feels, music is a very important part of my life. It’s pretty much been my one constant companion. It makes my highs higher and my lows tolerable. So, to see music stripped of meaning and treated carelessly breaks my heart.

I discovered The Velvet Underground my sophomore year of college and it was love at first listen. I loved their sound, their lyrics, their content, their vibe, their fascinating history – all of it. One of my favorite songs of theirs is Heroin. Yes, it is about heroin. It isn’t advocating for the use of heroin, but it isn’t really speaking out against it either. As far as I understand it, it’s just about a person who chooses to do heroin. The lyrics describe why he uses and how it feels. Throughout the entire song, there is a drum that mimics a heartbeat. When Lou Reed sings about taking the drug, that beat quickens along with the pace of the song until you feel like your own heart might explode. And then the pulse slows again as he comes down from his high. I highly recommend you give Heroin a listen. Like it or not, you’ll respect it. It is truly an experience and I’m amazed by it every time I hear it.

And so, imagine my frustration when I heard this song that I love used as background music in a car commercial. There are layers upon layers to appreciate in Heroin, but they stripped it down to only the guitar and one line. The line they used was “I have made a big decision”. Some idiot heard that and thought to him/herself, “great, buying a car is a big decision, so this is totally appropriate”. If you know the song though, you know that the complete line is “I have made a big decision, I’m gonna try to nullify my life”. Not quite the same is it? Kind of dark, isn’t it? Kind of grossly inappropriate to use to sell SUVs, isn’t it? What a shame.

The exception to Music Ruiners is Volkswagen. In the 90’s, Volkswagen ran a series of commercials that celebrated the wonderful connection between music and driving. They picked excellent music and focused the commercials more on the euphoric feeling of driving while listening to a great song than on the car itself. I’m a bit embarrassed to admit it, but that’s how I first heard about Nick Drake, who is another of my favorite musicians. Volkswagen succeeded because they celebrated the music and the experience of listening instead of using a song out of context and stripping it of its meaning because it has a catchy melody.

Nietzsche observed that without music, life would be a mistake. He wrote that “The musical art often speaks in sounds more penetrating than the words of poetry, and takes hold of the most hidden crevices of the heart”. I couldn’t agree more. And so marketers, let’s leave the sacred alone, ok?

Conan the CNP – The Crohn’s Saga Part 86

Yes, I really did tell my nurse that having Conan the CNP on the recovery floor to put people out of their misery would be a good idea. She disagreed.

For those who don’t know by the way, CNP stands for certified nurse practitioner. If you’ve been reading along, you’ll know that this occurred a few days after I’d had surgery for my Crohn’s Disease. The recovery had not been going well. My body was simply not waking back up, so I’d needed to have a catheter reinserted to prevent bladder infection and an ng tube to keep me from constantly vomiting bile. I’d already been sick from the Crohn’s for over a year at this point, so these recent developments were unfortunately just the icing on the cake. I’d been physically broken, but now I was finally starting to waver mentally and emotionally.

So yeah, that state combined with a lack of sleep and the lack of filter from painkillers had me wishing that someone would just put me out of my misery. Or at least just knock me out for a while. It’s difficult to convey what it’s like to be in a mental state like that, so I’m going to kick it up a notch and risk alienating some of my readers by bringing up philosophy.

If you’ve never read Emmanuel Levinas, you should give him a try. He has a wonderful mind, a big heart, and a knack for explaining ideas that are difficult to articulate. Like all existentialists, he spends a lot of time exploring the self and what that concept even means. One of my favorite observations of his is that there is a similarity suffering and insomnia. In both, you become aware that it is impossible for you to ever escape from yourself.

We spend most of our day engaged in activities, so we’re most often both thinking and doing. However, when you can’t sleep, you are only thinking and not doing. You can’t will yourself to sleep and the more you try, the further into your mind you get. You become aware that you can’t just turn your mind off. You can’t get away from thinking. In short, when you experience insomnia, you experience yourself entirely as a mind and you realize that you can’t divorce yourself from your perspective. Levinas described it as feeling enchained to yourself.

That enchainment is the same with suffering. In suffering, you realize that can’t escape being you. Even if you fall asleep, you will still be you with all of your pain when you wake back up. It’s a frustrating experience. You’re unable to do anything to help yourself. There is no pause button, off switch, or fast forward. You’ll never be able to escape yourself. You can’t create your own relief. Instead, you just have to endure.

So yeah, I didn’t really want to die, but the thought of being knocked out at least until I was further healed was very appealing.